Special Needs Family Episodes

55
Dec. 30, 2020

55 Losing your child to a rare disease. Daniel DeFabio on Menkes Syndrome

“You may have a shorter life with your child but you still have a life with your child and some of this will be happy.” Daniel DeFabio on DADicated.com Daniel DeFabio is married and a father of two boys, Alex and Lucas. Sadly Lucas quite recently passed away at the age of 11.5 due to Menkes Syndrome, a rare disease he had been diagnosed with at the age of 1. Daniel shares how he adjusted his expectations of what raising a child might look like at the point of the diagnosis, his views and expe...