“You may have a shorter life with your child but you still have a life with your child and some of this will be happy.” Daniel DeFabio on DADicated.com
Daniel DeFabio is married and a father of two boys, Alex and Lucas. Sadly Lucas quite recently passed away at the age of 11.5 due to Menkes Syndrome, a rare disease he had been diagnosed with at the age of 1.
Daniel shares how he adjusted his expectations of what raising a child might look like at the point of the diagnosis, his views and experiences as a rare dad, how he dealt with the loss, how the Lucas’s condition impacted the family and what helped him and his views on fathering a child that he knew he would lose.
The most powerful takeaways for me as a dad where:
Hope you’ll like it, thanks for listening.
To book Philipp as a keynote speaker on empowering dads and building successful families reach out via www.dadicated.com.
GUEST (Daniel DeFabio):
Philipp Hartmann (host):
Weblinks from this episode:
Disorder: The Rare Disease Film Festival: